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Special Needs: Differences Between Siblings

Any parent with more than one child knows that their children are different. Sometimes, VERY different.  But what happens when your children notice the differences between themselves and their brother or sister with special needs? 

My post today over at The Homeschool Village is all about this unique relationship that my kids and kids in many other families have.  I give some tips on how to foster their relationships and build them all up in the process.  Please hop over to my Special Needs Support post at The Homeschool Village today!

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Therapy-Free Summer

boys

It has officially begun. Not summer, yet, but our break from therapies.  I felt like they were handing us the Golden Ticket when D1’s OT said, “You guys need to have a break. Enjoy the summer together as a family and don’t worry about therapies. You deserve it.”

Ten years. 10 years of OT off and on, speech therapy on an ongoing basis, PT part time… it’s all just so… weird to think about right now.  In the past parents have said to me, “Wow you have your hands full. I couldn’t do that.” But do what? Drive back and forth and sit in waiting rooms? Lots and lots of waiting in waiting rooms.  Going to therapies has really just been a way of life for us.

There were times when we were there three times a week.  Others when it was only once, but for 2 hours.  Sometimes only D1 was taking therapies, and other times both were. People have asked why we do it.  Some parents, homeschoolers who don’t want anyone else’s influence on their kids and don’t think anyone else needs to help them, REALLY don’t understand why.  The reason is simple, however:  I want my boys to be as successful as they possibly can be.

They were born with big challenges in their lives.  Drug affected brains don’t operate like non-affected brains.  Certain synapses have to be taught to connect.  Muscle groups have to be taught the proper way to move. Sensory systems need help learning what to tune into and what to ignore.  These aren’t things that my boys would simply outgrow.

Developmental delays and sensory dysfunction are both in the category of hidden disabilities.  You can’t tell there is anything wrong when you see my kids… at least, not at first. They both “look normal”. That’s because they are. And normal, for them, is a bit different than normal for other kids.

For the first time, we get a break. They get a break.  The years of early intervention are just about over. Karate, bike riding, and swimming will take over where physical and occupational therapy left off. Afternoons will be unbroken by my hurried yell to wet, playing boys, “Dry off quick! You have OT in 5 minutes!” or “Why are you muddy?! We have to leave RIGHT NOW!” There will be none of that. They can play.

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They can just BE.

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Life After OT

1171408_72354631“When was the last time you guys took a break from therapies?” His OT asked me this question, and I hadn’t really thought about it before. 

“Never,” I replied, “we’ve been at this 2-3 times a week for 10 years.”

Wow.  The realization hit me pretty hard after I said it.  We have literally been in active therapy of one sort or another for TEN years with our boys (D1 in particular).  I have sat in waiting rooms for 2-4 hours a week for TEN YEARS.  Speech therapy, occupational therapy, physical therapy, all to give them the best tools for life later on.

Her response was a relief to this Momma. “Well, he’s at the age now where I begin to recommend that other activities take over for the work he’s doing in OT. Karate is the second activity I recommend, and the first is swimming, at least for all these sensory-needy kids. They all love to swim. We don’t want them to live their whole childhood in therapies. He’s aging out.”

YES!!!!

Nothing is definite yet, but the main gist of things is that they are noticing huge growth in D1, since he began taking Karate two months ago. They want to, at least, give us a break for the summer.  Best case scenario, he will be discharged from his Speech/OT Social group and the Bal-a-vis-X group until he is in need at a later time. Discharged. Maybe for good. WOW!

Our younger son is currently taking PT, and would be happy to stop for a while good.  She told me, “We want to give your family a break. You deserve it and you guys should have your summer for your family. It’s time.”  We’ll see what the next few weeks tell us, but if this works out, we will be done with therapy appointments in mid-June!

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More Discipline, or Just a New Normal

Courtesy of SXC by

Image credit: Stock XChng (by takuna)

I noticed her, as she sat there reading The Sensory-Sensitive Child.  Titles like that always jump out at me because I’ve read a lot of those books, and of course I have my favorites too.  I asked her if she had read The Out of Sync Child yet, which sparked a conversation.

“People tell me my son talks too much and is annoying. I am just surrounded by people who keep telling me I need to spank him more, or that I need more structure, more discipline, to do this or that better with him. They just DON’T UNDERSTAND MY SON.”

This was from a mom whose 7 year old son was just diagnosed Asperger’s Syndrome. We met in the waiting room of the therapy office where my boys get speech, OT and PT.  What an overwhelming thing to have to jump into with both feet! This mom is trying to do her best. She is gathering her information and seeking to find out everything she can about what makes her son tick, so that they can be successful.  She pulled him out of public school, because he wasn’t doing as well there as he needed to be. Now she is homeschooling, and others around her are so free with their opinions.

It is so easy to look in from the outside and give an opinion, but until you spend 24 hours in that home, with that child, you have no idea.

We have been at this for 10 years.  Our 10 year old came to us as a newborn with special needs.  We’ve been doing the OT/Speech routine for almost as many years as he has been alive. Our 8 year old too, has been in OT/PT for a couple of years. For us, it’s normal.  It’s not YOUR normal, but it’s OUR normal.  But this mom?  She’s brand new to all of it, and her son is too. All she knows is that now she is starting to get information. Now she is starting to feel that there is at least some light ahead.  Now she knows she’s not crazy. Or a bad mom.

Having a child with special needs is a new experience. It’s hard fluctuating between the relief of knowing what is wrong, and the negatives of “best case scenarios”, “expected prognosis”, and of course the opinions of every other person who has ever seen your kid throw a tantrum in public. And they, naturally, think you should just discipline him more.  But what does your heart say?

It’s time for a new definition of normal. Normal is what ever routine you can establish that will help your child succeed and your household to function, hopefully all at once. Normal is what ever it takes to bring out the best in your child, without pulling out the last of your hair or despairing because she still can’t ______. (Fill in missing developmental step.) 

Never forget that God made your child, and knows her.  He knit her together within you (or her biological mother) and brought her into your family for you to raise and care for. He is not worried about her. He knows what you can do and He knows what you cannot do without Him.

So do not fear, for I am with you;
do not be dismayed, for I am your God.
I will strengthen you and help you;
I will uphold you with my righteous right hand. Isaiah 41:10

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